WV Press Release Sharing

CHARLESTON, W.Va. — A new West Virginia Parkinson’s disease (PD) registry has taken a big step forward with the announcement of a planning grant from The Michael J. Fox Foundation for Parkinson’s Research (MJFF), the world’s largest nonprofit funder of Parkinson’s disease research. The announcement was made today during a meeting with legislators, policymakers, patients, and care partners at the State Capitol.

Recognizing West Virginia’s strong partnerships and potential as a national leader, MJFF has provided a grant of $160,000 to the West Virginia University’s Rockefeller Neuroscience Institute (WVU RNI) to host key stakeholder discussions to shape a potential framework for the statewide Parkinson’s registry. The framework could be used as a “Best Practices” plan for other states to follow.